Friday, February 12, 2010

Struggling to get more fit

Had a remarkably better day today than the snow storm day was yesterday. I had my tooth repaired - a piece of it had gone missing, now it is whole again - and I started motioning again, because my asthma specialist said that I could. I had the thermal mask on and yet I coughed after having walked for just a short while. I had taken the attack medicine in beforehand, yet after having walked half of the distance, walking started to succeed without immense shortness of breath and an incredible stiffness in legs (since there was not enough oxygen). Still it was by no means normal walking. I don't know how long it will take but I really have to concentrate in my efforts to get more fit now. I don't even know if it is possible, and to which degree, but I must do my best. Both asthma and fibromyalgia make it difficult and they even work together to add on each other's harmful effects, but I still have to try to overcome this really bad and weak physical state.

I have been able to cut my edible cortizone in half, finally! That is really good news - it is a very harmful medicine which anyway has been necessary to maintain breathing and to treat the lungs while the infection has been as worst. My doctor told me to take calcium supplements in order to prevent possible damage to bones. My bones have been scanned and they have been in excellent condition; they should rather stay that way too.

Otherwise there is tons of new snow everywhere but the country just keeps going. Workers have been ploughing snow all through yesterday, last night and today, and you could ask, "What snow storm?" Everything is cleaned, roads are open, no school days or working days were canceled, we have electricity, shops are open... my respect to those who have made all this possible!

Today was a sunny day, really a lot of light when it was reflecting from the white snow all over!

At home, my husband and my older daughter did the shoveling of the snow. How wonderful to have such family members!

Thursday, February 11, 2010

Ignored, neglected, betrayed when sick

Ignored and neglected when sick
When you get ill, you get sympathy. Warm words, caring, love, affection, prayers, checking-ons.... you think. Maybe if you have flu you will get all that, for a short while. Not if you have something else. Definitely not if you are seriously ill. Then what you get is people turning their backs on you. People going away. People right away disappearing from your life. Severe chronical illness seems to sort true friends from those who just pretend friendship. Most seem to have just pretended. Suddenly they have much to do, somewhere else. Suddenly they are busy. Somewhere else. Suddenly they don't have time - for you.

Okey we who are chronically ill don't need that. We do not deserve bad treatment. Therefore we withdraw. What happens to us is human. It happened even to our Lord Jesus Christ. When he needed support, his friends were sleeping. Not one hour could they stay awake with him and support him in his struggle. He even asked them for support - I have not asked. And He, too, was betrayed by one of His closest friends. It must have hurt Him enormously. For I have noticed that too - closest friends get very distant when you need their support. They are even the biggest cowards to betray you when it suits their own intests. They are not defending you against other world - they are letting other world smash you in their feet if defending would demand an effort or taking part officially, publicly. You get to think they are ashamed of you, not proud of you.

In the end, getting seriously and chronically ill is a blessing. It really shows you very clearly and without doubt who is the real friend. And heavens, they are not so many.